The St. Louis Region of the Porsche Club of America (STLPCA) has announced that the proceeds from its 6th Biennial All-Porsche Car Show will benefit the Children’s Tumor Foundation. The Foundation is dedicated to finding effective treatments for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body. The show, which begins at 11 a.m. and concludes at 3 p.m., will take place on September 16th in the Courtyard at the Kemp and will feature 60 of the finest examples of the Porsche brand covering the past 60+ years. Admission to the event is free, with a portion of the proceeds benefiting the Children’s Tumor Foundation’s medical research, patient support, and education programs.
The Children’s Tumor Foundation is a nonprofit organization dedicated to ending neurofibromatosis through research. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. It can lead to blindness, deafness, chronic pain, disfigurement, learning disabilities, bone abnormalities, cancer and a wide range of other complications.
The STLPCA has adopted an "NF Hero," six-year-old Nicole Riley who was diagnosed with neurofibromatosis on her first birthday. Nicole has a large plexiform neurofibroma in the area of her lower abdomen and legs. This tumor has prevented Nicole from being able to walk on her own. In January 2009, three-year-old Nicole underwent surgery for a bladder bypass due to the damage the tumor had caused her kidney and bladder. She is currently in clinical trial studies and is taking a trial drug, Gleevec, with the hope that it will stop the tumor’s growth. At present, unfortunately, the tumor continues to grow at a very fast pace.
Porsche is one of the most iconic brands in the automotive world. For almost 65 years, Porsche has helped define the sports car experience. Porsche Clubs started 60 years ago and the St. Louis Region of the Porsche Club of America was founded in 1960. STL PCA has more than 700 members who enjoy a variety of driving, technical, and social events.
The Kemp Auto Museum, located at 16955 Chesterfield Airport Rd in Chesterfield, Missouri includes rare and vintage European automobiles from the turn of the century to modern day. It is home to one of North America's finest private collections of Mercedes Benz ever displayed in one location. Admission to the Museum is only $5 during the Porsche Show.
About the Children’s Tumor Foundation:
The Children's Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF is under-recognized and underdiagnosed yet affects more people than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefitting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. For more information, please visit www.ctf.org.